We've been patching Matthew's left eye, on his Opthalmologists instructions. It's not going well. He can't see a fucking thing out of his right eye with his left one patched and so far, I have not been able to come up with one single activity he can actually see enough do to while away the hours.
My heart is breaking for him. And please - don't post telling me the good Lord above wouldn't give me more than I can handle, because sometimes he just fucking well does.
Tuesday, June 30, 2009
...cast off!
Waiting patiently to be called...
One final photo of his cast for prosperity.The saga is finally over. Last Tuesday Matthew went back in to hospital to have the wires removed from his elbow and his cast removed for good. It was a really long day. His surgeon had called to tell us he wouldn't be taken to surgery until at least 12pm but of course the hospital still wanted us there by 7am for admission. Luckily Matthew was allowed to have breakfast at 6am - he didn't end up going to theatre until nearly 1.30pm. The poor little bloke was starving. He's normally pretty patient and tolerant of inconveniences like that but it really was starting to take its toll on both of us.
The surgery went well. He was only under for about 40 minutes but it took a long time once we was back on the ward to wake up and get moving. We didn't end up getting home until well after 7pm that night. It was a long day and one I think he is glad is now behind him. He can move his arm well now and there isn't any pain but he still can't straighten it right out. His surgeon says he will do so in his own time. For now, he is pleased to be back riding his bike but has assured me tree climbing is off the agenda. Good man...
Monday, June 22, 2009
"Ugly" fabric
A few weeks ago Helen had a giveaway to rid her stash of some fabrics she didn't like anymore - I believe she went so far as to call them ugly. Of course, I couldn't go past the opportunity to fill my sewing cupboard with more fabric I'll probably never use, I entered- and won. Yay!
Helen's lovely package arrived today and amazingly enough, I actually found some stuff that would complement some of my exisiting stash quite nicely. (I'm not actually sure what that says about stash but anyway...). Thanks again Helen (and Ryan thanks you for the Freddo. It didn't last long!). You've boosted my quota of girly patterns too. I don't have many of them enter the house with two boys. :)
Thursday, June 18, 2009
Opthalmologist # 4 & Rhuematologist
Matthew had his review on Tuesday with both his Opthalmologist and his Rheumatologist.
Rheumatologist
Brilliant results. Matty currently isn’t showing signs of swelling, warmth or pain in any joints at all. He’s got a good range of movement in all his joints although the muscles on the back of his thigh (hamstring, I think – Dr Jenn will be sure to correct me if I’m wrong…) are still a bit tight but hopefully the stretching he does at TKD will help. Or he could just be like his parents and not particularly flexible. Even in my most active & sporty days, I don’t ever recall not be able to touch my toes as being a problem.
Anyway, this news thrilled me. It will be the first winter since 2005 that he has been pain free. Amazing stuff and long may it continue.
Follow up – 6 months (15 December)
Opthalmologist
Left eye -6/6 (perfect), cataract stable Right eye - 6/12 good, but not great.
This is so frustrating. No matter what we do, we just can’t seem to get fantastic vision from his right eye. I don’t actually ever notice that he has a vision problem – when he is using both eyes he compensates remarkably well and there isn’t much he can’t see, but when his right eye is isolated, it is obvious that there is a problem.
There is now no reason he shouldn’t be getting better vision from that eye and Dr D thinks perhaps his left eye is over compensating, which means his right eye is becoming slack. Sooo, back to patching the left eye over the school holidays to force the right back in to action. Matthew is not a happy camper. He hates this game immensely and I completely understand why.
It’s going to be a miserable couple of weeks. :(
Follow up- 6 weeks (28 July).
Rheumatologist
Brilliant results. Matty currently isn’t showing signs of swelling, warmth or pain in any joints at all. He’s got a good range of movement in all his joints although the muscles on the back of his thigh (hamstring, I think – Dr Jenn will be sure to correct me if I’m wrong…) are still a bit tight but hopefully the stretching he does at TKD will help. Or he could just be like his parents and not particularly flexible. Even in my most active & sporty days, I don’t ever recall not be able to touch my toes as being a problem.
Anyway, this news thrilled me. It will be the first winter since 2005 that he has been pain free. Amazing stuff and long may it continue.
Follow up – 6 months (15 December)
Opthalmologist
Left eye -6/6 (perfect), cataract stable Right eye - 6/12 good, but not great.
This is so frustrating. No matter what we do, we just can’t seem to get fantastic vision from his right eye. I don’t actually ever notice that he has a vision problem – when he is using both eyes he compensates remarkably well and there isn’t much he can’t see, but when his right eye is isolated, it is obvious that there is a problem.
There is now no reason he shouldn’t be getting better vision from that eye and Dr D thinks perhaps his left eye is over compensating, which means his right eye is becoming slack. Sooo, back to patching the left eye over the school holidays to force the right back in to action. Matthew is not a happy camper. He hates this game immensely and I completely understand why.
It’s going to be a miserable couple of weeks. :(
Follow up- 6 weeks (28 July).
Monday, June 1, 2009
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